Oral Presentation Joint 2016 COSA and ANZBCTG Annual Scientific Meeting

PROMPT-Care: An eHealth decision-support system utilising patient reported outcomes to support patient-centred care and self-management (#90)

A Girgis 1 2 , Geoff Delaney 1 2 3 , A Arnold 1 4 , I Durcinoska 1 , M Gerges 1 , J Levesque 1 2 , T Sandell 4 , A Miller 4 5 , N Kaadan 1 3 , M Carolan 1 4 6 , S Della-Fiorentina 7 , S Avery 1 3 , W Ng 1 3 , A Maher 8 , N Cook 9
  1. Centre for Oncology Education and Research Translation(CONCERT), Ingham Institute for Applied Medical Research, Liverpool
  2. South Western Sydney Clinical School, The University of New South Wales, Sydney
  3. Liverpool Cancer Therapy Centre, Liverpool Hospital, Sydney
  4. Illawarra Cancer Care Centre, Wollongong Hospital, Wollongong
  5. Centre for Oncology Informatics, University of Wollongong, Wollongong
  6. Medical Research Institute, University of Wollongong, Wollongong
  7. Macarthur Cancer Therapy Centre, Campbelltown Hospital, Sydney
  8. Didymo Designs, Wollongong
  9. Cancer Institute NSW, Sydney

Background: Patient reported outcomes (PROs) are increasingly important in patient-centred care, but widespread collection does not occur.

Aims: To develop, implement and evaluate feasibility and acceptability of an eHealth decision-support system, PROMPT-Care, which facilitates a) PRO data capture, b) data linkage and retrieval to support clinical decisions and patient self-management, and c) data retrieval for ongoing evaluation and innovative research.

Methods: a) The PROMPT-Care eHealth system was developed, b) patient reported outcomes were selected, c) algorithms to inform intervention thresholds for self- and clinical-management were determined, d) clinician PRO feedback summary and longitudinal reports were designed, e) patient self-management resources were collated, f) PROsaiq, a custom IT system will transfer PRO data in real-time into the hospital-based oncology information system, to support clinical decision-making, and g) the PROMPT-Care system feasibility and acceptability assessment were undertaken.

Results: Overall, 35 patients completed 67 PROMPT-Care assessments, evaluation surveys (n=28), evaluation (n=14) and cognitive (n=10) interviews. Five oncology staff were also interviewed to explore usability of the system. All patients found the system easy to use, reported the time to complete online assessments (mean 15 min) as “about right” and were willing to answer more questions. Patients valued the self-management resources “… those types of sites [resources] and all the information encouraged me… you realise you got to do these things if you want to get better”. Oncology staff reported high acceptability and feasibility “I would have an impression about a patient, that things weren’t going fantastically, but it [reports] gave greater granularity and specificity about where the needs were”.

Conclusion: The PROMPT-Care system is feasible and acceptable and will be implemented as routine care in South Western Sydney and Illawarra Shoalhaven LHDs in 2017. Barriers to facilitating large-scale implementation into clinical practice can be addressed.